A Sip of Lemonade

There are certain times in your life where you can feel the overwhelming power of people’s love for you.  Usually big, happy things.  Weddings, birth of a child, times like that.  But there is also sad times where you feel it, like moving away or the death of a loved one.  And then there are times when it’s a mixture of all of it.  That’s what this weekend brought us.  Sean and I were absolutely overwhelmed by the love and support we felt this weekend at the Inaugural Jack’s Herd Cocktail Reception and Silent Auction.  People came together from all different parts of our life to get dressed up, have a little fun and helped us to raise and incredible amount of money for a cause that we personally know can make a tremendous difference.  It was impossible not to feel sad, knowing what, or more accurately who, it was that brought us all out that night, but it was the feelings of love that won out when it was all said and done. 

Back when I first said I wanted to do this and Sean, my sister Sara, and my friend Beth all said we may not have enough time to pull it all together for when we wanted it to happen, I remember thinking ‘come on, how much could go into this?’ Well, (just a minute while I finishing eating my words) it certainly was a lot.  But, just as we knew from the moment we left the hospital in Philly without Jack, we were not alone.  People from all over lent a hand in the process from acquiring donations, giving us resources and advice; it was amazing the generosity we were already encountering.  The craziest part was that it was also coming from complete strangers, people we’d never met but that once they heard what we were working towards were so willing to help.  Things anonymously showed up on doorsteps and monetary donations poured in.  Before we knew it we found ourselves wrapping and numbering things and having to say ‘Thank you so much but we have enough for this year’.  It was surreal. 

I, of course-as with everything, was like a manic ball of energy and so by the time Saturday rolled around I was exhausted and ready for it all to be done.  Part of it was, this did not feel like a party for me.  There was no denying that the only reason Sean and I were going down this road at all was because we had lost a part of us so great that we need something to pour the love and heartache into; something to help us keep going on without Jack and yet still keep us tethered to him.  I knew I would feel better when it was over and I was able to see that we’d done some good.

So we cleaned up, dressed up, and walked into something we never could have imagined would turn out as wonderfully as it did.  The amount of people that came, and the amount of money that was donated was incredible; but the love and support for Jack’s Herd that was in that room was just unfathomable.  At one point in the evening we, well I-because Sean can never get a word in and most times even when he can lets me to the talking, spoke to welcome and thank everyone for coming.  As I looked up and saw everyone out there looking up at us, my throat caught for a moment.  I was legitimately overwhelmed to look up and see the amount of people that have seen or heard about us going through hell and are there for us as we are starting to come out the other side.  Here’s most of what I said:

“Now I am going to be a total victim of my generation and use television as an example to make a point.  There is a great new show on called ‘This is Us’.  In the very first episode a young couple goes in to the hospital to have triplets.  One of the babies doesn’t make it.  And this young dad is shown out in the waiting room, completely unravelling, which was just such a real moment, and the doctor that did the delivery comes out to talk to him.  As the young, new dad is crying, the doctor says to him, “I like to think that one day you'll be an old man like me talkin' a young man's ear off explainin' to him how you took the sourest lemon that life has to offer and turned it into something resembling lemonade. If you can do that, then maybe you will still be taking three babies home from this hospital, just maybe not the way you planned.” 

That statement resonated so deeply within me.  We did not take Jack home from the hospital with us.  But we did take his legacy.  And because of the support you have all shown us in the creation of Jack’s Herd and the generosity you show here tonight, we are still able to help Jack do something beautiful with his life; to make a little lemonade.  Your generosity allows us to support other families as they navigate through the roughest days of their life and hopefully find the strength to make lemonade of their own one day. “

And the God’s honest truth is that Saturday did taste a little of lemonade; still a little sour and maybe I really would prefer something else to drink all together, but there was a sweetness that was undeniable. 

And just to acknowledge the “elephant” in the room, no I have not packed on the pounds.  Yes, in the midst of all of the planning for this big Jack’s Herd moment, we have also been processing some big news.  We are expecting a baby.  But I will save all of the feels that come along with that until next time.   

Behind the Curtain

The Wizard of Oz knew what was up.  He had this whole land of everything beautiful and shiny, with all of these happy little people singing-it looked like a good setup albeit there was a witch hanging around making things messy here and there.  Now it’s only at the end that we see “The Great and Powerful Oz” for what he was, this bumbling, fumbling, frazzled guy behind the curtain trying to keep up the charade that he had all of his shit under control, a.k.a. he was just the parent of Oz.  Things behind the curtain didn’t look as pretty and his tough guy act melted away pretty quickly but it was real, man.  I had nine glorious days off from work for February break full of family visits, and friends, and plenty of behind the curtain moments. 

My cousin and his family rolled into town the first weekend for their yearly visit; I think we are on year five now.  We packed in a lot of fun stuff, which was well received by all of the kids, which, trust me, is a huge deal.  There was swimming, slides, sledding, and horses and a ton of smiles.  It was easy to revel in how much fun they were having and smile along with them.  Don’t be fooled by this rosy picture I’ve painted for you, friends.  Behind the curtain there were plenty of meltdowns, bickering, empty mom-threats, tears, time-outs, and words spoken through gritted parent-teeth.  The good far outweighed the bad and it was another visit that makes you look forward to the next one.

We tried to lay low for the few days we had in between the visit and the trip we had planned to go out to Boston to see our friends.  Of course plans being what they are, I ended up cleaning the whole house, top to bottom-floor trim and all, with the exception of our bedroom, which is like a vortex of disorder in an otherwise pretty orderly place. This was all in preparation for an interview with the local newspaper about Jack’s Herd and Jack’s story.  I was equal parts nervous and excited but I felt like the house looked good and we even managed to make it outside to enjoy the gorgeous, freak weather we got in February in the northeast.  Kindergarten paperwork showed up for Kennedy and I died a little.  As I snapped a picture of it to send to Sean, when I went back to look at it and saw her playing in the background, drawing on the driveway in chalk it was clear I am the only one that isn’t ready for this- my little one is not so little anymore.  The interview went great, until the photographer that came along wanted a picture that required us to be at the computer in our room and just like that, the curtain was pulled back and the chaos was exposed.  We were able to laugh it off, but my God that was mortifying.

Friday we made our way to our favorite city to see one of our favorite families.  We’ve always loved spending time with Jen and Andrew but now their little guy Oliver is just icing on the cake.  You could just mush him for days- those cheeks were made for kisses.  Every time Kennedy would groan, “He is adawww-wable,” we would laugh but whole-heartedly agree.  We again soaked up the still amazingly warm weather going to the parks sans coats-willing Mother Nature to give us more. We went to Disney on Ice’s “Dare to Dream” with the little lady, and since we’ve seen about 5 of these shows and consider ourselves connoisseurs of character themed ice-capades, I feel confident in telling you this was a good one.  As we made our way to our seats somehow was managed to sit in the right row but the wrong end.  We didn’t realize it until 15 minutes in.  We were right at the end of the “stage” and so every time the performers came in or out we could see them behind the curtain, quite literally.  So my kid would excitedly scream the characters name before they even came out for everyone else to see.  As I looked around I realized we were the only people that were that far over that didn’t work at the arena and so we check the seats against the tickets and made our way to our much better, closer to center-stage seats.  The excitement on her face literally made my eyes fill with tears (and this made me feel like my mother-in-law) and I’m pretty sure Sean’s eyes filled with tears as he repeatedly shelled out money for a light-up wand, cotton candy and the ridiculous Dory hat that came with it and everything else Kennedy “needed”-but when she genuinely thanked him and kissed his cheek I knew she could have gotten way more out of the guy.  It was a great weekend but behind the curtain there was four-year-old sassiness that was awfully embarrassing at times, a painful moment where a well-meaning stranger inquired about my kids and how many I had, and how old they were where I had to figure out how I could avoid the awkwardness and tears and yet still do right by Jack, and running through the park as the warm sky finally gave way to rain that Kennedy yelled at and blamed Sean for.

It’s messy behind the curtain, people.  The curtain comes in all different shapes: a smile, perfect Instagram photos that leave out the tears and refused “cheeses”, the clean house but terribly messy bedroom.  It’s ok to keep the curtain pulled but just don’t forget that after the wizard was exposed for what he was: an overwhelmed, exhausted guy just trying to keep the show going- he was able to slow down and breathe and actually get the job done. 

We’ve got a lot going on behind the curtain over here these days but that’s for another time.

Take me to Church

I was raised in a religious family; church every Sunday.  Every. Single. Sunday.  We weren't just holiday Catholics (though I always thought they had the right idea).  I grew up with the traditions set firmly in place: beautiful baptisms and big parties to follow, first communion and big parties to follow, confirmation and a party to follow.  I think that's what always made it fun as a kid-the celebrations that seemed to go hand in hand.  I complained about going through all of it. A lot. It was always made clear-it was not my choice until I was older, at which point I would ask for clarification on exactly how old.  It's not that I disliked religion, not even close.  I think faith is a beautiful thing.  But understand: I am a questioner.  Always have been, about all things. That doesn't mesh easily with religion and so it's been a relationship of ups and downs, on-agains and off-agains, and questioning commitment.

When Sean and I got married we didn't do so in the church.  This was kind of a big deal with lots of, "your grandmother may not be happy,"  and, "it would be so nice for you to be able to be married in our church," comments.  I wasn't budging.  I had left for college 7 years before and hadn't "had a church" that was mine in just as many years, going only occasionally when I felt homesick or sad or when I was home for holidays.  My parents had even changed parishes and no longer attended the church I grew up going to.   I also, very firmly felt that God would be present at my wedding whether I was married in a church or next to a dumpster.  He was either always present or he wasn't; I chose to believe that it was unconditional.  And so, looking to smooth the decision over with the older gals, we found a reformed Catholic priest that basically dressed the part and said the right words and prayers to appease the crowd and either way we were married.  Mission accomplished.

We went on not attending church, not against it, but not looking to get involved either.  When I found out I was pregnant though, there was never any question that we would baptize her.  I knew we should go back to church and refresh our game before meeting the priest after she was born but we didn’t and so when it was time to go and talk with Fr. Jerry, a nice man but clearly no dummy, it was bound to be awkward and good ol’fashioned Catholic guilt inducing.   I definitely earned a trip to the confessional that day, lying more than once about our attendance to mass at their church and swearing in church (an f-bomb, for the love of all things holy!) after I dropped a paci.  I failed his test, clearly fishing to see if I had been to the church as recently as I’d claimed.  It was a mess the whole thing, and I found myself wondering if it all even mattered.  We went to baptism class (yes, there is a class) and set the date but not before Fr. Jerry talked us into saying our vows before him, oh and God, in the church to legitimize them in the eyes of the church.  So me and Sean, who had lost his wedding ring, with our baby in tow (I wanted to ask wasn’t it worse that we “had our baby out of wedlock” in the eyes of the church but didn’t want to push it with the priest who clearly saw I was not amused by the whole thing) oh and don’t forget my nine-months pregnant sister who had to serve as our witness.  He called me Pat as we said our vows, I’m pretty sure I swore again; it was really a joyous day.  We were told that was our wedding date within the church but don’t ask me what day it was-I have no freaking clue.  It was June. I’m pretty sure.  We went out to Ruby Tuesday’s after.  Classy.  But we were extra married and our little girl was going to be introduced to a family tradition that in the end was worth doing.  It was a beautiful day surrounded by love and family and a light that I think can only be explained as faith that someone greater than ourselves was protecting our girl.

We continued to go to church for a while after that but Kennedy was no church mouse and the noise got to be too much to wrangle and so we bowed out for a while again. 

And then came Jack.  When we got all of the diagnosis information I was mad.  At the world. At God. I was mad at everyone.  I kept being told, “God wouldn’t give you more than you could carry,” and all of those platitudes but that’s easy to say when you aren’t the one carrying it all.   As time went on and things happened as they did, we found ourselves in Philadelphia at a restaurant the night before our appointment to meet with the people we hoped could save our son, talking about baptism.  Would we have him baptized by a priest if he was born so soon, or would we have faith that we would make it to a Christening down the road a few months?

Three days later, I heard myself say to the nurses and social workers, “I want a priest here.  I want my baby baptized before he dies.”  They were scrambling to get a Catholic priest to the hospital on a Sunday but they did.  And so, Jack’s baptism looked a little different than his sister’s; a lot different.  Instead of being surrounded by his family and our friends he was surrounded by doctors and nurses.  I was not holding him as the holy water was poured on his head, but watching him as I was being operated on.  I didn’t cry tears of joy that my son was being welcomed into a community of love and tradition, I was sobbing that this would be the only “celebration” we would ever have for him.  And then he was gone.  And I hated God.

One of the last things I remember about the days following Jack’s death, when my mind finally, mercifully shut down to protect me, was meeting again with Fr. Jerry at our church to plan Jack’s funeral.  As we talked Fr. Jerry reminded me our children are really God’s and he doesn’t promise how long we will have them with us on earth and I can vividly remember thinking ‘you bastard, he was my child, no one else’s’ and that is all I remember until a few weeks later.

We went to church for a few months because I was desperate to feel like there had to be a reason for all of this.  That I had to believe I could feel him a little more inside of a church.   And then Mother’s Day rolled around and the ferocious beast that is grief came out again, and I was mad at God all over again.  So no, I wasn’t going to go to church. 

I don’t apologize for the path my faith has taken.  I also believe that the God I choose to put my faith in does not hold this against me.  I do not think I have to be in a church to have Him watch over my family, and me, or to feel the pain that courses through my heart every day.  I also do not place the responsibility of Jack being taken from us on God- because I can’t not imagine that a being that loves the way I was taught He loves, could ever make the decision for two people to hurt as Sean and I do.   So for me, church is watching my little girl sleep, it is hearing her laugh when no one is listening; it is the moments of inexplicable peace I feel in my heart from time to time.  I pray with Kennedy once in a while but my heart isn't always in it and so I hate to have that be her early experiences.  I know I’ll find my way back to the pews of a church some day, I always do.  I also know that faith is believing in something you can’t see; and I have faith that my boy is somewhere, with someone that will care for him in my place.